TransplantChild Key Activities
During 2021, the following activities will be carried out in TransplantChild frame
ERNs’ virtual consultations are carried out through the CPMS system these advisory boards follow a series of steps. Experts across Europe are invited to collaborate giving advice in consultation panels in the diagnosis or treatment of low prevalence and complex conditions.
Clinical Practice Guidelines
The development of Clinical Practice Guidelines (CPGs) is one of the key objectives of ERN TransplantChild, since it is one of the basis to improve healthcare in paediatric transplantation.
Paediatric Transplantation European Registry (PETER) is a new rational, efficient, interoperable, open, accessible paediatric transplant registry for all type of paediatric transplantation. PETER will allow generating real world evidence monitoring by the identification of common outcomes for all types of transplant. This registry can be used as a model to support care and research for the benefit of patients, improvement of the transplanted patient healthcare, their life expectancy and long-term QoL of children and their families.
During 2020, the following activities will be carried out in TransplantChild frame
The ERNs’ legal framework sets out the objectives, principles and criteria of the ERNs and defines the general implementation process including the assessment, approval and evaluation of the ERNs. Once positively assessed and approved, the ERNs are expected to perform and fulfil their goals and criteria and to be evaluated at least every five years.
- H2020 – MSCA – RISE 2018
- Cost Action 2019
- H2020-Twinning WIDESPREAD – 2018
- MSCA – ITN 2019
Find out more about TransplantChild through interviews with our professional network members
Dr Piotr Kalicinski
Childrens Memorial Health Institute
Dr Lars Wennberg
Karolinska University Hospital
Dr Caroline Lindemans