NEWS

Dissemination WG: Testimonies e book

From the TransplantChild Dissemination WG we are aiming to gather testimonies from patients from all around Europe.In some cases, receiving a transplantation is the only treatment for a person living with a Rare Disease, but paediatric transplantation is a highly...

ESPGHAN Annual meeting 2022

The 54th Annual Meeting of the European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), will be held in Copenhagen, Denmark, from Wednesday, 22nd June to Saturday, 25th June 2022, and ERN TransplantChild will be present as an exhibitor!If...

Liver Transplantation for metabolic diseases

This webinar regarding "Liver transplantation for metabolic diseases" was presented Prof. Alastair Baker, paediatric hepatologist at King's College Hospital in London, England. The webinar went live on 11th May 2022.. This webinar enlists on the series of webinars...

Vaccination of Solid Organ Transplant candidates and recipients

This webinar regarding the "Vaccination of SOT candidates and recipients" was presented by Dr Patricia Costa Reis, from the Paediatric Nephrology and Kidney Transplantation Unit of Hospital de Santa María in Lisbon, Portugal. The webinar went live on 18th February...

Launch of Monitoring 2021 exercise and TransplantChild awards

This webinar regarding the "Launch of Monitoring 2021 exercise and TransplantChild awards" was presented by Dr José Jonay Ojeda Feo, coordinator of the Quality & Safety WG of the ERN TransplantChild at La Paz University Hospital in Madrid, Spain, and by Dr Lars...

MEDIA

War and transplantation

During the 13th Board, Professor Piotr Kaliciński, from Children’s Memorial Health Institute of Warsaw, Poland lead a session in which he explained how they are living the current situation in Ukraine and how they are facing the increasing number of patients. Below you can find the link to a short movie that shows the situation of Ukranian children and the help they are receiving from the Institute. From TransplantChild we would like to thank Prof. Kaliciński and his team, as well as the centres that have offered their help in the care of the Ukranian patients.

Live (almost) like others

The documentary “Live (almost) like the others” by director Smail Beldjelalia, plunges into the daily life of 8 families, one member of which, child or adult, is suffering from chronic intestinal failure, and is treated by home parenteral nutrition or transplantation. With the collaboration of Professor Christophe Chardot and Professor Olivier Goulet, from Necker-enfants malades Hospital.

Interview with Rodrigo Adam and Terry Lourties

Paediatric transplantation is a complex process which requires a lifelong follow-up. However, receiving a paediatric transplantation did not prevent Rodrigo and Terry from living a normal life. Watch the full interview to learn more about their story.

ERNs Crosslink

Crosstalk among ERNs is an important task that could help improving healthcare for rare diseases. Therefore, it is necessary that the networks start collaborating and working together in their overlapping areas. 

Story of Paula

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula, a girl from Barcelona, the European Reference Networks help get the best pre and post-operative care.

European Reference Networks: a ray of hope

In 2017 over 900 highly-specialised medical teams from all over Europe joined their forces in the European Reference Networks (ERNs). In this video, doctors and patients explain how the ERNs can tackle complex or rare diseases.

RELATED EVENTS

ESPGHAN Annual meeting 2022

The 54th Annual Meeting of the European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), will be held in Copenhagen, Denmark, from Wednesday, 22nd June to Saturday, 25th June 2022, and ERN TransplantChild will be present as an exhibitor!If...

EJP-RD Information/Networking event on 25th of January

In the context of the EJP RD internal call for innovation projects in clinical trials methodologies in limited populations, that opened on 7th of December 2020 and will close on 3rd of March 2021, an “Information/Networking Event” will be...

47TH ANNUAL MEETING OF THE EBMT [VIRTUAL]

Starts:  Mar 14, 2021 8:30 AM (CET)Ends:  Mar 17, 2021 6:00 PM (CET) The 47th EBMT Annual Meeting will take place virtually, 14th-17th March, 2021. More than 6,700 delegates attend the EBMT Annual Meeting. The top-notch scientific programme for physicians, nurses,...

II Solidary Run for Paediatric Transplantation

We are pleased to invite you to join us on this event, participating in this Virtual Solidarity Race that will be celebrated during the 8th-12th of July. It will be an event full of energy and motivation where each one will run from their respective cities through a...

Rare diseases day 2020

Rare Disease Day is the official international awareness-raising campaign for rare diseases. Rare Disease Day takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers...

EVENT POSTPONED: 2nd TransplantChild workshop on translational research: “Novel strategies in paediatric transplantation”

Dear colleagues, We are organizing the 2nd TransplantChild workshop on translational research: "Novel strategies in paediatric transplantation". We wanted to know if you wanted to collaborate with the course by giving...

Patient Reported Outcomes Measures

Dr. Samantha Anthony was invited to the 7th Board of the Network to present her project: “Patient-reported outcome measures within pediatric solid organ transplantation: A systematic review”.

We have launched our Exchange Programme

The aim of the Exchange Programme 2020-2022 is to share knowledge and scientific quality, and to stimulate and strengthen collaboration and cooperation between health care professionals in European Reference Networks (ERN). Knowledge sharing and...

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