War and transplantation
During the 13th Board, Professor Piotr Kaliciński, from Children’s Memorial Health Institute of Warsaw, Poland lead a session in which he explained how they are living the current situation in Ukraine and how they are facing the increasing number of patients. Below you can find the link to a short movie that shows the situation of Ukranian children and the help they are receiving from the Institute. From TransplantChild we would like to thank Prof. Kaliciński and his team, as well as the centres that have offered their help in the care of the Ukranian patients.
The documentary “Live (almost) like the others” by director Smail Beldjelalia, plunges into the daily life of 8 families, one member of which, child or adult, is suffering from chronic intestinal failure, and is treated by home parenteral nutrition or transplantation. With the collaboration of Professor Christophe Chardot and Professor Olivier Goulet, from Necker-enfants malades Hospital.
Paediatric transplantation is a complex process which requires a lifelong follow-up. However, receiving a paediatric transplantation did not prevent Rodrigo and Terry from living a normal life. Watch the full interview to learn more about their story.
Crosstalk among ERNs is an important task that could help improving healthcare for rare diseases. Therefore, it is necessary that the networks start collaborating and working together in their overlapping areas.
Story of Paula
Paediatric transplantations require a complex, life-long follow-up. For patients like Paula, a girl from Barcelona, the European Reference Networks help get the best pre and post-operative care.
European Reference Networks: a ray of hope
In 2017 over 900 highly-specialised medical teams from all over Europe joined their forces in the European Reference Networks (ERNs). In this video, doctors and patients explain how the ERNs can tackle complex or rare diseases.
This webinar regarding the Analysis of Stakeholders' needs and expectations was presented by Dr José Jonay Ojeda Feo, coordinator of the Quality & Safety WG of the ERN TransplantChild at La Paz University Hospital in Madrid, Spain. The webinar went live on 10th...
Rodrigo Adam and Terry Lourties are two young adults who received a paediatric transplantation at the age of 1 and 14 respectively, at the Bicetre Hospital in Paris, member of ERN TransplantChild. In this interview, they share with us their experience on how the...
Dear colleagues, We are organizing the 3rd TransplantChild workshop: "Tolerance in paediatric transplantation and transition to adulthood". The workshop will be held on line, on Thursday, 11th November. The main aim is addressing training in the area of paediatric...