NEWS

MEDIA

ERNs Crosslink

Crosstalk among ERNs is an important task that could help improving healthcare for rare diseases. Therefore, it is necessary that the networks start collaborating and working together in their overlapping areas. 

Story of Paula

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula, a girl from Barcelona, the European Reference Networks help get the best pre and post-operative care.

European Reference Networks: a ray of hope

In 2017 over 900 highly-specialised medical teams from all over Europe joined their forces in the European Reference Networks (ERNs). In this video, doctors and patients explain how the ERNs can tackle complex or rare diseases.

RELATED EVENTS

EJP-RD Information/Networking event on 25th of January

In the context of the EJP RD internal call for innovation projects in clinical trials methodologies in limited populations, that opened on 7th of December 2020 and will close on 3rd of March 2021, an “Information/Networking Event” will be...

47TH ANNUAL MEETING OF THE EBMT [VIRTUAL]

Starts:  Mar 14, 2021 8:30 AM (CET)Ends:  Mar 17, 2021 6:00 PM (CET) The 47th EBMT Annual Meeting will take place virtually, 14th-17th March, 2021. More than 6,700 delegates attend the EBMT Annual Meeting. The top-notch scientific programme for physicians, nurses,...

II Solidary Run for Paediatric Transplantation

We are pleased to invite you to join us on this event, participating in this Virtual Solidarity Race that will be celebrated during the 8th-12th of July. It will be an event full of energy and motivation where each one will run from their respective cities through a...

Rare diseases day 2020

Rare Disease Day is the official international awareness-raising campaign for rare diseases. Rare Disease Day takes place on the last day of February each year. The main objective of the campaign is to raise awareness amongst the general public and decision-makers...

EVENT POSTPONED: 2nd TransplantChild workshop on translational research: “Novel strategies in paediatric transplantation”

Dear colleagues, We are organizing the 2nd TransplantChild workshop on translational research: "Novel strategies in paediatric transplantation". We wanted to know if you wanted to collaborate with the course by giving some support or disseminating this...

Patient Reported Outcomes Measures

Dr. Samantha Anthony was invited to the 7th Board of the Network to present her project: “Patient-reported outcome measures within pediatric solid organ transplantation: A systematic review”.

We have launched our Exchange Programme

The aim of the Exchange Programme 2020-2022 is to share knowledge and scientific quality, and to stimulate and strengthen collaboration and cooperation between health care professionals in European Reference Networks (ERN). Knowledge sharing and...

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