War and transplantation
During the 13th Board, Professor Piotr Kaliciński, from Children’s Memorial Health Institute of Warsaw, Poland lead a session in which he explained how they are living the current situation in Ukraine and how they are facing the increasing number of patients. Below you can find the link to a short movie that shows the situation of Ukranian children and the help they are receiving from the Institute. From TransplantChild we would like to thank Prof. Kaliciński and his team, as well as the centres that have offered their help in the care of the Ukranian patients.
Live (almost) like others
The documentary “Live (almost) like the others” by director Smail Beldjelalia, plunges into the daily life of 8 families, one member of which, child or adult, is suffering from chronic intestinal failure, and is treated by home parenteral nutrition or transplantation. With the collaboration of Professor Christophe Chardot and Professor Olivier Goulet, from Necker-enfants malades Hospital.
Interview with Rodrigo Adam and Terry Lourties
Paediatric transplantation is a complex process which requires a lifelong follow-up. However, receiving a paediatric transplantation did not prevent Rodrigo and Terry from living a normal life. Watch the full interview to learn more about their story.
Crosstalk among ERNs is an important task that could help improving healthcare for rare diseases. Therefore, it is necessary that the networks start collaborating and working together in their overlapping areas.
Story of Paula
Paediatric transplantations require a complex, life-long follow-up. For patients like Paula, a girl from Barcelona, the European Reference Networks help get the best pre and post-operative care.
European Reference Networks: a ray of hope
In 2017 over 900 highly-specialised medical teams from all over Europe joined their forces in the European Reference Networks (ERNs). In this video, doctors and patients explain how the ERNs can tackle complex or rare diseases.
14th TransplantChild Board of the Network
We are pleased to announce that in just over a month's time the 14th Board of the Network will be held on 11-12th May in Warsaw, Poland. We would like to emphasize the importance of these meetings in evaluating the Network's operation and determining the next...
4th TransplantChild Workshop
We are organising the 4th TransplantChild workshop: “Novel Training Programmes in Paediatric Transplantation“. The workshop will have a hybrid format. It will be hosted by Centro Hospitalar Universitário do Porto, Portugal, but participants will also be able to...
Dissemination WG: Testimonies e book
From the TransplantChild Dissemination WG we are aiming to gather testimonies from patients from all around Europe.In some cases, receiving a transplantation is the only treatment for a person living with a Rare Disease, but paediatric transplantation is a highly...
ESPGHAN Annual meeting 2022
The 54th Annual Meeting of the European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), will be held in Copenhagen, Denmark, from Wednesday, 22nd June to Saturday, 25th June 2022, and ERN TransplantChild will be present as an exhibitor!If...
Liver Transplantation for metabolic diseases
This webinar regarding "Liver transplantation for metabolic diseases" was presented Prof. Alastair Baker, paediatric hepatologist at King's College Hospital in London, England. The webinar went live on 11th May 2022.. This webinar enlists on the series of webinars...
Vaccination of Solid Organ Transplant candidates and recipients
This webinar regarding the "Vaccination of SOT candidates and recipients" was presented by Dr Patricia Costa Reis, from the Paediatric Nephrology and Kidney Transplantation Unit of Hospital de Santa María in Lisbon, Portugal. The webinar went live on 18th February...
Launch of Monitoring 2021 exercise and TransplantChild awards
This webinar regarding the "Launch of Monitoring 2021 exercise and TransplantChild awards" was presented by Dr José Jonay Ojeda Feo, coordinator of the Quality & Safety WG of the ERN TransplantChild at La Paz University Hospital in Madrid, Spain, and by Dr Lars...
Portal vein complications after paediatric liver transplantation
This webinar regarding "Portal vein complications after paediatric liver transplantation" was presented by Dr Hubert van der Doef, from the departmenf of Gastroenterology, Hepatology and Nutrition of the University Medical Center of Groningen, the Netherlands. The...
Social and cultural issues of organ transplantation
This video on "Social and cultural issues of organ transplantation" was presented by Professor Guido Giarelli, from the Department of Health Sciences at University 'Magna Graecia' in Catanzaro, Italy. The video was presented live on January 7th 2022. With this video...
Analysis of Stakeholders’ needs and expectations
This webinar regarding the Analysis of Stakeholders' needs and expectations was presented by Dr José Jonay Ojeda Feo, coordinator of the Quality & Safety WG of the ERN TransplantChild at La Paz University Hospital in Madrid, Spain. The webinar went live on 10th...