Crosstalk among ERNs is an important task that could help improving healthcare for rare diseases. Therefore, it is necessary that the networks start collaborating and working together in their overlapping areas.
Story of Paula
Paediatric transplantations require a complex, life-long follow-up. For patients like Paula, a girl from Barcelona, the European Reference Networks help get the best pre and post-operative care.
European Reference Networks: a ray of hope
In 2017 over 900 highly-specialised medical teams from all over Europe joined their forces in the European Reference Networks (ERNs). In this video, doctors and patients explain how the ERNs can tackle complex or rare diseases.
Quality & Safety WG meeting: SOP for the management of claims, complaints, suggestions and expressions of gratitude
Doc TransplantChild CHUC InterviewDescarga
Could you please explain which has been your government lockdown policy? No lockdown in Sweden, recommendation for social distancing. How has the hospital activity changed to adjust to the pandemic? Mostly on the adult side, arrangement for extra ICU beds, elective...
Could you please explain which has been your government lockdown policy? Primary and secondary schools open (up to age 16 years), high schools and universities only teach on-line. Old age homes closed for all visitors. no public or private gatherings with more than 50...