The patients suffering from a rare disease of low prevalent condition receive care in their national healthcare providers, the treating doctor can request advice to a specific ERN through the CPMS virtual consultation panels. A board of experts are invited to join and discuss the patient’s case, the treating doctor supported by this virtual consultation will diagnose or treat the patient.
Clinical Patient Management System
CPMS supports ERNs in the diagnosis and treatment of rare or low prevalence complex conditions across national borders of European Member States.
The main steps needed to perform a consultation in the CPMS platform are:
1. Create your EU Login account here.
2. Request access to the CPMS through this link.
3. Get the informed consent from the patient (you can find the latest informed consent here).
4. Register your patient in the CPMS.
5. Write a consultation panel and invite experts.
Here below we expland these steps in detail and help you get all set up!
We also offer personalized training, email us to email@example.com and we will set a date!
Check a summary of the CPMS platform
Step 1. Create you EU Login account
- Visit the EU Login account creation webpage.
- Fill the information and click “Create your account“.
- You will receive an email with a link to set your password, once settled click “Proceed”.
- Now you will be logged in your EU Login account.
Step 2. Request access to the CPMS
- Visit the Access request portal to EU applications using this link.
- Select the CPMS in the dropdown list, if not pre-selected.
- Proceed to “Step 2. select an organisation“.
- Click the OPEN button next to TRANSPLANTCHILD and search your country.
- Click OPEN next to your countrys’ name and select your centre clicking on the radio button.
- Proceed to “Step 3. select an access profile” and select your profile depeding on your position, usually “HP” and “Researcher” are the needed ones.
- Proceed to “Step 4. Type a comment”, review your information and “Submit request access“.
Your request will be accepted shortly after and will receive a confirmation via email, if this takes some time please write to firstname.lastname@example.org.
Step 3. Login to the CPMS
- Enter the CPMS login page, save it to your Favourites and pin it to your hotbar if desired.
- Click on “Login via EU Login” and proceed with the authentication procedure.
- On your first login to the CPMS platform you will be asked to write your professional role and area. Please state your speciality and field of study (i.e. cardiac paediatric surgeon or paediatric hepathologist)
Step 4. Enrol a patient
To write a consultation panel of a patient, this patient must be firstly enrolled in the CPMS, for that you need the signed informed consent. You can find it here.
- Navigate to the “Centre” view in the upper right corner of the interface, here you can see a list of all the patients enrolled in your centre.
- Click on the “Enrol patient” button at the left.
- Fill out the form with the patient details and checkboxes of the consents the patient has given, this is vital as without any consent the patient cannot be registered in the platform.
- Once filled click on the “Enrol patient” button at the lower right to enrol the patient.
Once pressed you will be redirected to the Centre view with the patient appearing in the list of your centre enrolled patients.
Step 5. Create a consultation panel
Once your patient is enrolled you can start to write consultation panels for his/her case.
- Navigate to the “Centre” view of the CPMS.
- Either use the search bar or manually search the patient in the Patients List nad click on it. A view containing all the open panels for that patient is opened.
- Click on the “Open a panel” button to open a new consultation panel for that patient.
- You will be prompted with the consultation panel form.
Note that consultation panels can be used to either consult a differential diagnosis, experiences/results with certain drugs, etc. or to share a rather interesting case with the network.
Step 6. Provide data and context to the panel
The first step once you opened a panel i sto provide some context and medical data so that colleagues con get a grasp of the condition of the patient being consulted.
For that a general form is opened where you will want to provide:
- Nickname: a short nickname to the panel, it does not have to be descriptive but better if it is (do not use any nicknames liable to identity the patient).
- Consultation request description: a short description of the patient status and main question to be answered.
- Point of care specialist: The name of the HCP professional that takes care/follows the patient, if different of the one uploading the panel.
- Panel lead: the person in charge of the panel, medically speaking.
- Panel manager: Some centres have dedicated personel for this management, you can select them here to check on your panels.
Apart from the general form, there are other complementary information field that can be selected in the left column. By clicking in them they will be shown under thee main consultation form. These complementary forms provide extra information to the panel if needed, and are:
- Episode description: explain episodes symptoms, current treatment and exam/image/laboratory findings. This is the most used complementary form as here is where you should provide the main data.
- Pre-tranplantation history: diagnosis and donor/recipient information.
- Diagnosis at transplantation: provide disease diagnosis in ICD, ORPHA, ICCC or other nomenclatures.
- Procedure of transplantation: select date and type of transplantation, if transplanted.
- Post-transplantation data: rejection, GVHD, infections,…
- Medical documents: you can attach medical documents and images when ANONYMIZED, if the face is visible please blur it out or conceal it.
Other forms are available and provide more information but the above stated are the most useful. The other forms are:
- History of past illnesses and disorders.
- Allergies and adverse reactions.
- Family history.
- Surgical procedures.
Once you have provided all this information click on “Save” at the lower right to save the consultation form with the data introduced.
Step 7. Invite experts to the panel
Once your panel is created you can choose the professionals to send invites to.
If you just created a panel, the assistant will offer you to “Continue to panel selection“. You can see the list of all the available professionals to invite to the panel with their specialities.
If the panel was already created: just by entering the panel and moving to the “Panel members” tab, in the “Available” sub-tab you can see the list of all the available professionals to invite to the panel with their specialities.
You can continuously invite new professionals to the panel if the condition change or another professional is enroled in the CPMS platform.