Knowledge Sharing

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Latest News

  • 28th of October 2018 - Solidarity Run in Madrid for the paediatric transplantation, Madrid, Spain.
    28th of October 2018 - Solidarity Run in Madrid for the paediatric transplantation, Madrid, Spain.

     We are pleased to announce the Second Solidarity Run organized by La Paz Hospital. This year, the slogan will be "Madrid moves for the transplanted children", within the framework of the ERN TransplantChild network. It will be held on Sunday, October 28 from 9h, with options of 10Km, 6Km and 3Km. In addition to the children's race at 11h.

     

    More information

  • Join the RD-Connect Community

    In July 2018 the new RD-Connect Community was launched. This is an international association of individuals and organizations who would like to participate in shaping the rare disease field, promote data sharing and reuse and advance research. Membership is free of charge and open to organisations, research groups and individuals from diverse backgrounds, engaged in rare disease research anywhere in the world. Several ERNs have signed up as members, but we would be delighted to receive registrations from individual HCPs and research groups.

    Interested in joining? Fill out the registration form to become a member! For more information about the RD-Connect Community, please visit https://rd-connect.eu/about-rd-connect/become-member/

    Read more...

ERNs' stories: Story of Paula

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula the European Reference Networks bring a ray of hope.


European Reference Networks: a ray of hope for patients with rare and complex diseases, their families and doctors.

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula the European Reference Networks bring a ray of hope.


European Reference Networks for rare and complex diseases

Video presenting the European Reference Networks

Next Events

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TransplantChild Webinars Calendar 2018

September

Date (4pm CET)

 

Sept 06

ERN IT platforms pills

Sept 13

Research funding office pills

Sept 27

E-learning on Clinical Practice Guidelines: Agree methodology training session

 

October

Date (4pm CET)

 

Oct 10

Research WG meeting

Oct 11

QaS WG meeting

Oct 18

Monthly Transplantchild update

Oct 25

E-learning sessions: Module 1

 

November

Date (4pm CET)

 

Nov 01

ERN IT platforms pills

Nov 08

CPG WG meeting

Nov 15

Healthcare WG meeting

Nov 29

E-learning sessions: Module 2

 

December

Date (4pm CET)

 

Dec 06

EaT WG meeting

Dec 13

Networking/Knowledge management WG meeting

Dec 20

Monthly Transplantchild update

Dec  27

E-learning sessions: Module 3

 

 

TransplantChild Webinars Calendar 2019

 

January

Date (4pm CET)

 

Jan 03

Research funding office pills

Jan 10

Healthcare WG meeting

Jan 17

QaS WG meeting

Jan 24

E-learning sessions: Module 4

Jan 31

Monthly Transplantchild update

 

February

Date (4pm CET)

 

Feb 07

CPG WG meeting

Feb 14

EaT WG meeting

Feb 21

Monthly Transplantchild update

Feb 28

E-learning sessions: Module 5

 

March

Date (4pm CET)

 

Mar 07

Research WG meeting

Mar 14

Networking/Knowledge management WG meeting

Mar 21

Monthly Transplantchild update

Mar 28

E-learning sessions: Module 6

 

April

Date (4pm CET)

 

Apr 04

Healthcare WG meeting

Apr 11

QaS WG meeting

Apr 18

Monthly Transplantchild update

Apr 25

ERN IT platforms pills

 

May

Date (4pm CET)

 

May 02

CPG WG meeting

Sept 09

EaT WG meeting

Sept 16

Research WG meeting

Sept 23

Monthly Transplantchild update

 

June

Date (4pm CET)

 

Jun 06

CPG WG meeting

Jun 13

EaT WG meeting

Jun 20

Research WG meeting

Jun 27

Monthly Transplantchild update

 

As we announced it will be held in Brussels, Belgium the 23rd of November 2018. Registration open until the 20th of August. If you are not registered yet please contact us. 

 

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