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  • 28th of October 2018 - Solidarity Run in Madrid for the paediatric transplantation, Madrid, Spain.
    28th of October 2018 - Solidarity Run in Madrid for the paediatric transplantation, Madrid, Spain.

     We are pleased to announce the Second Solidarity Run organized by La Paz Hospital. This year, the slogan will be "Madrid moves for the transplanted children", within the framework of the ERN TransplantChild network. It will be held on Sunday, October 28 from 9h, with options of 10Km, 6Km and 3Km. In addition to the children's race at 11h.

     

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  • Join the RD-Connect Community

    In July 2018 the new RD-Connect Community was launched. This is an international association of individuals and organizations who would like to participate in shaping the rare disease field, promote data sharing and reuse and advance research. Membership is free of charge and open to organisations, research groups and individuals from diverse backgrounds, engaged in rare disease research anywhere in the world. Several ERNs have signed up as members, but we would be delighted to receive registrations from individual HCPs and research groups.

    Interested in joining? Fill out the registration form to become a member! For more information about the RD-Connect Community, please visit https://rd-connect.eu/about-rd-connect/become-member/

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ERNs' stories: Story of Paula

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula the European Reference Networks bring a ray of hope.


European Reference Networks: a ray of hope for patients with rare and complex diseases, their families and doctors.

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula the European Reference Networks bring a ray of hope.


European Reference Networks for rare and complex diseases

Video presenting the European Reference Networks

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La Paz, European leader in children's transplants, presents the TransplantChild network

Past News %PM, %10 %516 %2017 %13:%Aug
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 El Hospital madrileño La Paz ha presentado la red TransplantChild, una de las 23 redes europeas de referencia en trasplantes. Rafael Matesanz, director de la ONT, ha destacado que La Paz, el único hospital europeo que realiza todos los tipos de trasplantes infantiles, “ha llevado a cabo en los últimos 20 años cerca del 30% de todos los trasplantes infantiles en España”.

More information: https://consalud.es/comunidades-autonomas/la-paz-lider-europeo-en-trasplantes-infantiles-presenta-la-red-transplantchild-34556 

 

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