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    The ERNs help patients with rare or low-prevalence complex diseases. A disease is defined as rare when it affects fewer than one in 2 000 people, is serious, chronic and often life-threatening. Between 5.000 and 8.000 of rare diseases affect the daily life of around 30 million people in the EU.


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    ERN Virtual Consultation:

    ERNs’ virtual consultations are carried out through the CPMS system, these advisory boards follow a series of steps listed below. Experts across Europe are invited to collaborate giving advice in consultation panels in the diagnosis or treatment of low prevalence and complex conditions


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Patients Camp Krew 15-22 July 2017 - Toucha, Portugal

Past News Thursday, 06 July 2017 09:33
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APIR is hosting the second edition of Camp KREW, a common project with ALCER, OSOD and NVN, the national kidney patient associations of Portugal, Spain, Poland and the Netherlands. 

This camp is an opportunity for teenage kidney patients to meet and interact with other kids with the same health issues, with whom they will be able to share experiences, stories and ambitions. We hope this camp will boost the participants' self-esteem and self-acceptance, but our focus will not be on the disease, rather we will provide a program filled with fun moments, challenging activities and many opportunities to learn, laugh and relax.
When: 15 22 July, 2017
Where: Quinta da Fonte Quente, Tocha (
The camp facilities are located about 1.5 hours away from Oporto Airport and 2 hours away from Lisbon Airport. You will be able to reach the city of Coimbra from either airport by train. APIR will help you get from the airport to Coimbra and will provide transportation from Coimbra to Tocha.
Who: Each country will be represented by a team of 5 kidney patients ages 13-18 (transplant or pre- dialysis patients dialysis patients are not allowed for logistical reasons) + 1 nurse + 1 monitor
How much: Each country will pay APIR a fee of 2000€ which will cover lodging, meals, activities and insurance.

Read 1076 times Last modified on Thursday, 06 July 2017 09:40
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