Knowledge Sharing

News

Latest News

  • 28th of October 2018 - Solidarity Run in Madrid for the paediatric transplantation, Madrid, Spain.
    28th of October 2018 - Solidarity Run in Madrid for the paediatric transplantation, Madrid, Spain.

     We are pleased to announce the Second Solidarity Run organized by La Paz Hospital. This year, the slogan will be "Madrid moves for the transplanted children", within the framework of the ERN TransplantChild network. It will be held on Sunday, October 28 from 9h, with options of 10Km, 6Km and 3Km. In addition to the children's race at 11h.

     

    More information

  • Join the RD-Connect Community

    In July 2018 the new RD-Connect Community was launched. This is an international association of individuals and organizations who would like to participate in shaping the rare disease field, promote data sharing and reuse and advance research. Membership is free of charge and open to organisations, research groups and individuals from diverse backgrounds, engaged in rare disease research anywhere in the world. Several ERNs have signed up as members, but we would be delighted to receive registrations from individual HCPs and research groups.

    Interested in joining? Fill out the registration form to become a member! For more information about the RD-Connect Community, please visit https://rd-connect.eu/about-rd-connect/become-member/

    Read more...

ERNs' stories: Story of Paula

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula the European Reference Networks bring a ray of hope.


European Reference Networks: a ray of hope for patients with rare and complex diseases, their families and doctors.

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula the European Reference Networks bring a ray of hope.


European Reference Networks for rare and complex diseases

Video presenting the European Reference Networks

Next Events

European Day for Organ Donation and Transplantation, 9 September 2017

Past News %AM, %06 %435 %2017 %11:%Jul
Rate this item
(0 votes)

Every year, the European Day for Organ Donation and Transplantation (EODD) provides information on donation and transplantation of organs, tissues and cells. This year too, the EDQM calls on all Europeans to think about the problem of organ shortages which leaves thousands of patients sitting on waiting lists.

With 5 new patients added to waiting lists every hour in Europe, numbers keep growing. Most organ donors in Europe are persons who die in hospitals. Once it is certified that they no longer have any functions, doctors will ask the next of kin for consent for organ donation. Not always can consent for organ donation post death be presumed, at times even in the case of those who have signed up on a donors’ register. Legislation and practices vary across Europe in this regard, but what remains important everywhere is that we all make our views on organ donation well known to our families and next of kin.

To find more information on organ donation in your country, please click on the links provided below.

EODD 2017: Bring back hope to patients on waiting lists all over Europe! Every year, the European Day for Organ Donation and Transplantation (EODD) provides information on donation and transplantation of organs, tissues and cells. This year too, the EDQM calls on all Europeans to think about the problem of organ shortages which leaves thousands of patients sitting on waiting lists. With 5 new patients added to waiting lists every hour in Europe, numbers keep growing. Most organ donors in Europe are persons who die in hospitals. Once it is certified that they no longer have any functions, doctors will ask the next of kin for consent for organ donation. Not always can consent for organ donation post death be presumed, at times even in the case of those who have signed up on a donors’ register. Legislation and practices vary across Europe in this regard, but what remains important everywhere is that we all make our views on organ donation well known to our families and next of kin. To find more information on organ donation in your country, please click on the links provided below. Here are a few facts and figures which illustrate the state of organ donation and transplantation in Europe, according to the most recent data available.

more information: https://www.edqm.eu/en/events/european-day-organ-donation-and-transplantation-9-september-2017#sthash.lMDDTLMc.uxfs

 

Read 1630 times Last modified on %PM, %22 %590 %2017 %15:%Sep
Login to post comments
Cookies make it easier for us to provide you with our services. With the usage of our services you permit us to use cookies.
More information Ok