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  • 28th of October 2018 - Solidarity Run in Madrid for the paediatric transplantation, Madrid, Spain.
    28th of October 2018 - Solidarity Run in Madrid for the paediatric transplantation, Madrid, Spain.

     We are pleased to announce the Second Solidarity Run organized by La Paz Hospital. This year, the slogan will be "Madrid moves for the transplanted children", within the framework of the ERN TransplantChild network. It will be held on Sunday, October 28 from 9h, with options of 10Km, 6Km and 3Km. In addition to the children's race at 11h.

     

    More information

  • Join the RD-Connect Community

    In July 2018 the new RD-Connect Community was launched. This is an international association of individuals and organizations who would like to participate in shaping the rare disease field, promote data sharing and reuse and advance research. Membership is free of charge and open to organisations, research groups and individuals from diverse backgrounds, engaged in rare disease research anywhere in the world. Several ERNs have signed up as members, but we would be delighted to receive registrations from individual HCPs and research groups.

    Interested in joining? Fill out the registration form to become a member! For more information about the RD-Connect Community, please visit https://rd-connect.eu/about-rd-connect/become-member/

    Read more...

ERNs' stories: Story of Paula

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula the European Reference Networks bring a ray of hope.


European Reference Networks: a ray of hope for patients with rare and complex diseases, their families and doctors.

Paediatric transplantations require a complex, life-long follow-up. For patients like Paula the European Reference Networks bring a ray of hope.


European Reference Networks for rare and complex diseases

Video presenting the European Reference Networks

Next Events

I TRANSPLANT COEXISTENCE MEETING" in Madrid the 10th of March 2018.

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"I TRANSPLANT COEXISTENCE MEETING" in Madrid the 10th of March 2018. 

The initiative will be a meeting of coexistence between transplanted patients of marrow, liver, heart, lung, intestine, pancreas and kidney and in dialysis, as well as a walk of eight kilometres in gratitude to our donors.

The meeting will be supported by several Spanish transplant associations.

The initiative is open to the participation of all transplant patients, their families and donors who wish to do so, being able to walk, bike, run, or whatever you want! And after the walk, we will all spend a pleasant time. Bring sunscreen, food, water, games, etc. Come and share your experience with others!

This event is opened to everybody, come and join us!

For more information click here

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