They aim to tackle complex or rare medical diseases or conditions that require highly specialised treatment and a concentration of knowledge and resources. Medical knowledge and expertise travel rather than patients, using a dedicated IT platform and telemedicine tools to review a patient’s diagnosis and treatment.*
end-stage disease with a more sustainable chronic disease state and as such has profound clinical and psychosocial consequences, even more challenging in children, with more impact on the growing process.
Is a cross-cutting approach to supports common areas in different types of transplants as immunosuppression, rejection, tolerance, risk of infection and psychosocial wellbeing.
Transplanted children shift their primary disease to lifelong chronic condition or `disease´, mostly imposed by the necessary treatment regimens to avoid rejection.
This network is initially integrated for 18 HCP from 11 Members States with highly qualified multiprofesional teams and proven experience in PT.
TransplantChild is one of the 24 European Reference Networks (ERNs) approved by the ERN Board of Member States. The ERNs are supported by the European Commission.
All transplanted children shift their primary disease to lifelong chronic condition or `disease´, mostly imposed by the necessary treatment regimens as immunosuppression to avoid rejection, requiring a proper monitoring and handling of post- transplant complications.
The new lifelong medical condition is common in many aspects to all transplanted children regardless the transplanted organ and it is even more complicated when several organs or an organ and HSCT are accomplished.
Ensuring permanent efforts for the routinely implementation and standardization of the most recent improvements in the transplantation process as a whole (at pre-transplant, transplant and post-transplant stage), this holistic procedure will improve the expectancy and long-term quality of life of children and their families.
These efforts are directly focussed on: