ERN TransplantChild
Transplantation in Children
European reference networks
(ERN) are virtual networks involving healthcare providers across Europe for share knowledge in the patient’s diagnosis and treatments.
TransplantChild is an ERN for Paediatric Transplantation
both Solid Organ Transplantation (SOT) and Hematopoietic Stem Cell Transplantation (HSCT) which are low-prevalence and complex conditions that requires highly specialized expertise and resources.
Paediatric Transplantation
There is evidence that paediatric transplantation is the only curative therapeutic procedure targeted to the children population that has the highest mortality rates in their age group. The current approach is performed focused on a specific disease or organ.
Latest News
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CAN EUROPEAN REFERENCE NETWORKS HELP YOU?
The ERNs help patients with rare or low-prevalence complex diseases. A disease is defined as rare when it affects fewer than one in 2 000 people, is serious, chronic and often life-threatening. Between 5.000 and 8.000 of rare diseases affect the daily life of around 30 million people in the EU.
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ERN Virtual Consultation:
ERNs’ virtual consultations are carried out through the CPMS system, these advisory boards follow a series of steps listed below. Experts across Europe are invited to collaborate giving advice in consultation panels in the diagnosis or treatment of low prevalence and complex conditions
ERNs' Media
TransplantChild presentation
Helping patients with low-prevalence rare or complex diseases.
Story of Paula
Latest Webinars
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27 06 2019 - Registry Pills TransplantChild Registry Proposal
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07 08 2019 - CPG WG Meeting
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20 06 2019 - IT Platform Pills ERN Collaborative Platform (ECP)
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13 06 2019 - Networking/Knowledge Management WG Meeting
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06 06 2019 - CPG WG Meeting
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14 08 2019 - Next H2020 Research Calls focused on ERNs
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05 06 2019 - Next Research European Calls
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25 04 2019 - CPG WG Meeting
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24 04 2019 - E&T WG meeting
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25 04 2019 - IT Platform Pills - "CPMS new features and activity report"
Transplantation in essence replaces
end-stage disease with a more sustainable chronic disease state and as such has profound clinical and psychosocial consequences, even more challenging in children, with more impact on the growing process.
The Network Scope
Is a cross-cutting approach to supports common areas in different types of transplants as immunosuppression, rejection, tolerance, risk of infection and psychosocial wellbeing.
The cross-cutting approach
Transplanted children shift their primary disease to lifelong chronic condition or `disease´, mostly imposed by the necessary treatment regimens to avoid rejection.
Members of the Network
This network is initially integrated for 18 HCP from 11 Members States with highly qualified multiprofesional teams and proven experience in PT.